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Showing posts with label Tarlov Cyst Disease. Show all posts
Showing posts with label Tarlov Cyst Disease. Show all posts
1/04/2018

Hello World! - My recovery timeline.

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I was trying to think of a title for this entry. I wanted to write/scream, "I AM BETTER!" with decorations and balloons, but that...
2 comments:
9/16/2016

Pre-surgery instructions, pre-operative clearance, post-operative report

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I am posting three documents at the bottom of this entry for your viewing pleasure. Yay! This will be a gripping page-turner that will thri...
11/02/2015

Grieving the Life that Was

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Yesterday was NOT a good day.  When I said I was going to start a blog, and I wasn’t going to sugar coat it, I meant it.  So, here you have...
10/29/2015

Addiction Verses Dependency and Why You Should Lock Up Your Meds!

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Of course one of the first questions I asked the Pain Management Doctor was, “Am I going to get addicted to pain pills?”  The answer is, t...
10/28/2015

Why it Sucks to Be a Pain Management Doctor or Patient

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In Tennessee, there are strict Chronic Pain Management Guidelines. First, doctors have to have you go through a screening process. T...
2 comments:
10/26/2015

An Introduction to Pain Management for TC Patients - My Experience

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Oh the joys of receiving opiate drug treatment! I’m sure at some point, it used to be a simple straightforward process to have your pai...
10/11/2015

The Much Anticipated Consultation

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I finally got to see Dr. Feigenbaum, the world’s leading Neurosurgeon who treats Symptomatic Tarlov Cyst Disease! I was so excited and run...
3 comments:
10/10/2015

Let’s Fly to Dallas Ya’ll!

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During this trip, I had the incredible blessing of meeting two Tarlov “cysters.” God has miraculously put Anne in my life through a mutu...
9/29/2015

God’s Got Some Work for Me to Do

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My blessings list will continue to grow. Seeing God’s hand in this has kept me in high spirits, despite my pain and the uncertainties ahead...
9/19/2015

What is Tarlov Cyst Disease?

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Symptomatic Tarlov Cyst Disease is an extremely rare disease listed under the US Department of Health Genetic and Rare Disease Research Ce...
4 comments:
9/18/2015

Let the Research Begin

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*Please note that this is based off of my interpretation of information I found at the time. New information may have been published that ...
9/17/2015

I Have a WHAT-A-Hooey?

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Even though my MRI mentioned “incidental” Tarlov cysts, I had no idea what those meant. Honestly, I had skipped over that tiny phrase and ...
5 comments:
9/16/2015

How it’s All Gone Down - My Timeline

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The timeline of my symptoms has gotten progressively worse. I have had symptoms that line up with Tarlov Cyst Disease for several years, bu...