Showing posts with label Tarlov Cyst Disease. Show all posts
Showing posts with label Tarlov Cyst Disease. Show all posts

1/04/2018

Hello World! - My recovery timeline.

  • Hello World! - My recovery timeline.
    1/04/2018

    Hello World! - My recovery timeline.

    I was trying to think of a title for this entry. I wanted to write/scream, "I AM BETTER!" with decorations and balloons, but that...

11/02/2015

Grieving the Life that Was

  • Grieving the Life that Was
    11/02/2015

    Grieving the Life that Was

    Yesterday was NOT a good day.  When I said I was going to start a blog, and I wasn’t going to sugar coat it, I meant it.  So, here you have...

10/29/2015

Addiction Verses Dependency and Why You Should Lock Up Your Meds!

10/11/2015

The Much Anticipated Consultation

  • 10/11/2015

    The Much Anticipated Consultation

    I finally got to see Dr. Feigenbaum, the world’s leading Neurosurgeon who treats Symptomatic Tarlov Cyst Disease! I was so excited and run...

10/10/2015

Let’s Fly to Dallas Ya’ll!

  • Let’s Fly to Dallas Ya’ll!
    10/10/2015

    Let’s Fly to Dallas Ya’ll!

    During this trip, I had the incredible blessing of meeting two Tarlov “cysters.” God has miraculously put Anne in my life through a mutu...

9/29/2015

God’s Got Some Work for Me to Do

  • 9/29/2015

    God’s Got Some Work for Me to Do

    My blessings list will continue to grow. Seeing God’s hand in this has kept me in high spirits, despite my pain and the uncertainties ahead...

9/19/2015

What is Tarlov Cyst Disease?

  • What is Tarlov Cyst Disease?
    9/19/2015

    What is Tarlov Cyst Disease?

    Symptomatic Tarlov Cyst Disease is an extremely rare disease listed under the US Department of Health Genetic and Rare Disease Research Ce...

9/18/2015

Let the Research Begin

  • Let the Research Begin
    9/18/2015

    Let the Research Begin

    *Please note that this is based off of my interpretation of information I found at the time. New information may have been published that ...

9/17/2015

I Have a WHAT-A-Hooey?

  • I Have a WHAT-A-Hooey?
    9/17/2015

    I Have a WHAT-A-Hooey?

    Even though my MRI mentioned “incidental” Tarlov cysts, I had no idea what those meant. Honestly, I had skipped over that tiny phrase and ...

9/16/2015

How it’s All Gone Down - My Timeline

  • 9/16/2015

    How it’s All Gone Down - My Timeline

    The timeline of my symptoms has gotten progressively worse. I have had symptoms that line up with Tarlov Cyst Disease for several years, bu...