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1/04/2018Hello World! - My recovery timeline.
I was trying to think of a title for this entry. I wanted to write/scream, "I AM BETTER!" with decorations and balloons, but that...
Sharing my journey to encourage my fellow "cysters and mysters" and spread awareness about Tarlov Cyst Disease. There is no sugar coating it. This disease is nasty and life-robbing. Mixing some keepin' it real with a dash of spice, faith and humor. Let simmer for two years or until thoroughly cooked.
1/04/2018
Hello World! - My recovery timeline.
9/16/2016
Pre-surgery instructions, pre-operative clearance, post-operative report
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9/16/2016Pre-surgery instructions, pre-operative clearance, post-operative report
I am posting three documents at the bottom of this entry for your viewing pleasure. Yay! This will be a gripping page-turner that will thri...
11/02/2015
Grieving the Life that Was
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11/02/2015Grieving the Life that Was
Yesterday was NOT a good day. When I said I was going to start a blog, and I wasn’t going to sugar coat it, I meant it. So, here you have...
10/29/2015
Addiction Verses Dependency and Why You Should Lock Up Your Meds!
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10/29/2015Addiction Verses Dependency and Why You Should Lock Up Your Meds!
Of course one of the first questions I asked the Pain Management Doctor was, “Am I going to get addicted to pain pills?” The answer is, t...
10/28/2015
Why it Sucks to Be a Pain Management Doctor or Patient
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10/28/2015Why it Sucks to Be a Pain Management Doctor or Patient
In Tennessee, there are strict Chronic Pain Management Guidelines. First, doctors have to have you go through a screening process. T...
10/26/2015
An Introduction to Pain Management for TC Patients - My Experience
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10/26/2015An Introduction to Pain Management for TC Patients - My Experience
Oh the joys of receiving opiate drug treatment! I’m sure at some point, it used to be a simple straightforward process to have your pai...
10/11/2015
The Much Anticipated Consultation
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10/11/2015
The Much Anticipated Consultation
I finally got to see Dr. Feigenbaum, the world’s leading Neurosurgeon who treats Symptomatic Tarlov Cyst Disease! I was so excited and run...
10/10/2015
Let’s Fly to Dallas Ya’ll!
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10/10/2015Let’s Fly to Dallas Ya’ll!
During this trip, I had the incredible blessing of meeting two Tarlov “cysters.” God has miraculously put Anne in my life through a mutu...
9/29/2015
God’s Got Some Work for Me to Do
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9/29/2015
God’s Got Some Work for Me to Do
My blessings list will continue to grow. Seeing God’s hand in this has kept me in high spirits, despite my pain and the uncertainties ahead...
9/19/2015
What is Tarlov Cyst Disease?
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9/19/2015What is Tarlov Cyst Disease?
Symptomatic Tarlov Cyst Disease is an extremely rare disease listed under the US Department of Health Genetic and Rare Disease Research Ce...
9/18/2015
Let the Research Begin
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9/18/2015Let the Research Begin
*Please note that this is based off of my interpretation of information I found at the time. New information may have been published that ...
9/17/2015
I Have a WHAT-A-Hooey?
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9/17/2015I Have a WHAT-A-Hooey?
Even though my MRI mentioned “incidental” Tarlov cysts, I had no idea what those meant. Honestly, I had skipped over that tiny phrase and ...
9/16/2015
How it’s All Gone Down - My Timeline
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9/16/2015
How it’s All Gone Down - My Timeline
The timeline of my symptoms has gotten progressively worse. I have had symptoms that line up with Tarlov Cyst Disease for several years, bu...