Further research is needed about symptomatic Tarlov Cysts. I encourage everyone affected by this disease to join the Tarlov Cyst Foundation. The money helps go towards Tarlov Cyst disease advocacy, education within the medical community and research. The Tarlov Cyst Disease Foundation is a non-profit 501(c)(3) organization. There is also a link where you can make a tax deductible donation to the foundation.
Sharing my journey to encourage my fellow "cysters and mysters" and spread awareness about Tarlov Cyst Disease. There is no sugar coating it. This disease is nasty and life-robbing. Mixing some keepin' it real with a dash of spice, faith and humor. Let simmer for two years or until thoroughly cooked.
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