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10/25/2015
What Will Life Be Like While I’m Recovering from Surgery?
The first 24 hours after surgery, I will have to lay catheterized flat on my back and not get out of bed. After that, they will gradually ...
Sharing my journey to encourage my fellow "cysters and mysters" and spread awareness about Tarlov Cyst Disease. There is no sugar coating it. This disease is nasty and life-robbing. Mixing some keepin' it real with a dash of spice, faith and humor. Let simmer for two years or until thoroughly cooked.
10/25/2015
What Will Life Be Like While I’m Recovering from Surgery?
Question of the Day: Am I Going to Get Worse Quickly?
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Question of the Day: Am I Going to Get Worse Quickly?
Dr. F says I have had these cysts my whole life. Most people with TCs never have symptoms. No one is exactly sure of the cause of TCs. The ...
10/12/2015
Dr. Feigenbaum Explains Risks and Recovery from Surgery
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10/12/2015Dr. Feigenbaum Explains Risks and Recovery from Surgery
Dr. Feigenbaum continued by explaining the risks of the surgery . They include CSF leakage, permanently damaging surrounding nerves result...
10/11/2015
The Much Anticipated Consultation
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10/11/2015
The Much Anticipated Consultation
I finally got to see Dr. Feigenbaum, the world’s leading Neurosurgeon who treats Symptomatic Tarlov Cyst Disease! I was so excited and run...
9/19/2015
What is Tarlov Cyst Disease?
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9/19/2015What is Tarlov Cyst Disease?
Symptomatic Tarlov Cyst Disease is an extremely rare disease listed under the US Department of Health Genetic and Rare Disease Research Ce...