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10/30/2015Watching the World from the Inside Out
Tomorrow is “Oween,” as Jackson says. Usually, I would be sharing the excitement with my boys right now. Tonight I would be helping them dec...
Sharing my journey to encourage my fellow "cysters and mysters" and spread awareness about Tarlov Cyst Disease. There is no sugar coating it. This disease is nasty and life-robbing. Mixing some keepin' it real with a dash of spice, faith and humor. Let simmer for two years or until thoroughly cooked.
10/30/2015
Watching the World from the Inside Out
10/29/2015
Addiction Verses Dependency and Why You Should Lock Up Your Meds!
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10/29/2015Addiction Verses Dependency and Why You Should Lock Up Your Meds!
Of course one of the first questions I asked the Pain Management Doctor was, “Am I going to get addicted to pain pills?” The answer is, t...
10/28/2015
The Motherload of Tarlov Cyst Research Articles - Access it Here
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10/28/2015The Motherload of Tarlov Cyst Research Articles - Access it Here
I have created an open access folder where I am collecting all of the research articles that I can find related to Tarlov Cyst Disease...
Why it Sucks to Be a Pain Management Doctor or Patient
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Why it Sucks to Be a Pain Management Doctor or Patient
In Tennessee, there are strict Chronic Pain Management Guidelines. First, doctors have to have you go through a screening process. T...
10/27/2015
Controlled Substances - They're Watching
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10/27/2015
Controlled Substances - They're Watching
They're watching you... At my first appointment with the pain management doctor, I was told that I would be put in a state Prescript...
10/26/2015
An Introduction to Pain Management for TC Patients - My Experience
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10/26/2015An Introduction to Pain Management for TC Patients - My Experience
Oh the joys of receiving opiate drug treatment! I’m sure at some point, it used to be a simple straightforward process to have your pai...
10/25/2015
What Will Life Be Like While I’m Recovering from Surgery?
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10/25/2015
What Will Life Be Like While I’m Recovering from Surgery?
The first 24 hours after surgery, I will have to lay catheterized flat on my back and not get out of bed. After that, they will gradually ...
Question of the Day: Am I Going to Get Worse Quickly?
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Question of the Day: Am I Going to Get Worse Quickly?
Dr. F says I have had these cysts my whole life. Most people with TCs never have symptoms. No one is exactly sure of the cause of TCs. The ...
10/12/2015
Dr. Feigenbaum Explains Risks and Recovery from Surgery
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10/12/2015Dr. Feigenbaum Explains Risks and Recovery from Surgery
Dr. Feigenbaum continued by explaining the risks of the surgery . They include CSF leakage, permanently damaging surrounding nerves result...
10/11/2015
The Much Anticipated Consultation
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10/11/2015
The Much Anticipated Consultation
I finally got to see Dr. Feigenbaum, the world’s leading Neurosurgeon who treats Symptomatic Tarlov Cyst Disease! I was so excited and run...
10/10/2015
Let’s Fly to Dallas Ya’ll!
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10/10/2015Let’s Fly to Dallas Ya’ll!
During this trip, I had the incredible blessing of meeting two Tarlov “cysters.” God has miraculously put Anne in my life through a mutu...
9/29/2015
God says “Chill out Natalie. I’ve got this.”
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9/29/2015
God says “Chill out Natalie. I’ve got this.”
Before I got to see Dr. Feigenbum in Texas, of course I began to have doubts. Even though I had seen God working through this and pointing ...
God’s Got Some Work for Me to Do
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God’s Got Some Work for Me to Do
My blessings list will continue to grow. Seeing God’s hand in this has kept me in high spirits, despite my pain and the uncertainties ahead...
9/27/2015
Blessings and Miracles of God’s Provision
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9/27/2015
Blessings and Miracles of God’s Provision
God is faithful. Thank you God for my blessings. I’ve started making a list of all of the things that have happened where I have seen God’s ...
9/19/2015
What is Tarlov Cyst Disease?
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9/19/2015What is Tarlov Cyst Disease?
Symptomatic Tarlov Cyst Disease is an extremely rare disease listed under the US Department of Health Genetic and Rare Disease Research Ce...